Maya ready for the big day
We’re out! What a day. Maya and I arrived at the hospital this morning around 10 to help pack up and do some celebratory dancing while we waited for Zoe’s meds to finish. She’ll continue to be on various medications for awhile, and TPN (IV nutrition) for a few weeks until she’s eating normally again.
Zoe knows something is up
Our unit is still largely on isolation due to the summer cold that went around. Though most of the kids and parents were negative, we’re kept on isolation for the duration of our stay just to be safe. This meant that our confetti parade was almost all nurses, with a few parents and kids watching through their blinds.
It was a really nice moment, though. We’re incredibly grateful for everything Duke and WFU have done for us. Zoe had what can only be considered a successful and relatively
easy stay, considering her procedure, and I have to believe that Duke’s transplant expertise and care contributed heavily to that success.
From here on we’ll be outpatient, with clinic visits daily for awhile. We’ll be managing all of the things that the hospital managed while staying there, only now it’s split — med administration, blood draws and dressing changes 
happen at “home”, tests and checkups happen at the clinic.
I’ll go into more detail about everything once we understand it all, honestly it’s a little overwhelming.
For now, we’re going to get some sleep and enjoy being together again.
HLH Journal 