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2 thoughts on “Contact

  1. My son was diagnosed with HLH in January 2011 at 2 months old. I have kept up with your blog and your sweet little Zoe ever since. Your blog was actually the very first HLH blog i found and it gave me great insight into what was to come with my little boy Jackson. Anyways, Jackson had is BMT on April 15 and is doing wonderful. I read that you wanted to hear more about survivor stories and Jackson is another HLH survivor to add to the list. I started a blog for him during the days of him getting his diagnosis at

  2. My daughter is now 10yrs old but she was diagnosed with HLH when she was 4 months old. She went through extensive testing and 3 of the strongest chemos there are for a child that young. She had her BMT on Sept. 12 2002 and has done great ever since. This is a very rare disease and I wish more people were aware of it. Thank you!!!

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