Posts by order of oldest to newest:
- Diagnosis
- The Day After
- Dr. M’s Second Visit
- Before We Knew
- Temperature Scare & Other Notes
- Lastword Report & Notes
- Contemplating the Bone Marrow Transplant
- Surgery & Etoposide
- 2 O’clock and All is (mostly) Well
- Ferritin Levels & Blood Draws
- A Talk with the Duke PBMT unit
- One Tube Down & Other Notes
- Managing the Family
- The Revenge of Diaper Rash
- A New Hope
- Getting Through
- The Road Map
- Pins and Needles
- Not Yet
- “You’ve Got to Have Faith”
- Blood Pressure Record
- On Being an Advocate
- Treading Water
- The First of Many Firsts
- A Very Good Friday
- Taking our Medicine
- First Outpatient Visit
- Jeremy’s Story
- The Thursday Routine
- Never a Dull Day
- The Horrible Very Bad “NPO”
- HLH: A Simple Description
- FHL, or, Familial HLH
- Right in the Middle
- Ups and Downs
- A Visit to Duke Part 1: Surviving the Transplant
- A Visit to Duke Part 2: Questions for a Transplant Doctor
- Checking In
- The Story of Zoe’s Birth
- Those Difficult Thursdays
- The Transplant Decision
- Last Clinic Visit
- Zoe’s Development
- The Work-up
- What I’m Reading Tonight
- Reduced Intensity Conditioning & HLH
- Work-up Week Update
- More on Reduced Intensity Conditioning, Cord Blood, and HLH
- Work-up Week is Over
- Cyclosporine & Sodium, Updates
- Liam’s Lighthouse Foundation
- Calm Before the Storm
- Fears
- Day -22: Starting Campath
- Day -21: Campath Full Dose
- Duke Double Transplant Survivor
- Day -20: Campath Poster-Baby
- Day -19: Finishing Up Campath
- Good Humor
- Day -16: Weekend Worries & Monday Clinic
- Day -14
- Day -13: Zoe is 5 Months Old!
- Reflections
- Day -12: Go Kidneys Go
- Day -9: Fludarabine Starts
- Day -6: Steady as She Goes
- Day -5: Checking into PBMT
- Day -4: Melphalan
- Day -3: Father’s Day
- Day -2: Thiotepa Day
- Day -1
- Day 0: Transplant Day
- Day +1: The Honeymoon
- Day +2: Under the Chestnut Tree
- Day +3
- Day +4: Mucositis
- Day +6
- Day +7: A Hint of Good News
- Day +8: Never a Dull Day
- A Place In Between
- Day +10: The Worst of It (We Hope)
- Day +11: Happy Fourth!
- Day +12: A New Kind of Happiness
- Day +13
- Day +14: 0.2
- Day + 15: All About ANC
- Day +16
- Day +17: Happy 6 Months Zoe!
- Day +18
- Day +19: GOOOAAAL!
- Day +20
- Day +21: Engrafted!
- Day +22
- Day +24: All Quiet
- Day +25
- Day +27: 11.1
- Day +28: 7.3
- Day +30: Chimerism
- Day +34
- Day +37: All By Herself!
- Closing In
- Day +42: Packing Up
- Day +43: Home Sweet Home (Away From Home)
- Day +47: Outpatient Daze
- Day +50: The Med Routine
- Day +??
- Day +61: Keep on Truckin’
- Day +65: Line Breach
- Day +68: Changes Afoot
- Day +75: Finding a Natural Weight
- Day +82: Talking About Release
- Day +90 All About the Eating
- Day +100
- Programming Notes
- Post-transplant Work-up
- 30 Days of Light
- Thankful
- Reality Check
- Home for Christmas
- 6 Month Studies
- Diagnosis: One Year Later
- The Spring of our Discontent
- Two Steps Forward, One Step Back
- Surviving Summer
- A Scare-free Halloween?
- Change of Address
- Life Goes On
- Tempus Fugit
- Another Year
- No News is Good News
HLH Journal 