Day +43: Home Sweet Home (Away From Home)

Maya ready for the big day

We’re out! What a day. Maya and I arrived at the hospital this morning around 10 to help pack up and do some celebratory dancing while we waited for Zoe’s meds to finish. She’ll continue to be on various medications for awhile, and TPN (IV nutrition) for a few weeks until she’s eating normally again.

Zoe knows something is up

Zoe knows something is up

Our unit is still largely on isolation due to the summer cold that went around. Though most of the kids and parents were negative, we’re kept on isolation for the duration of our stay just to be safe. This meant that our confetti parade was  almost all nurses, with a few parents and kids watching through their blinds.

It was a really nice moment, though. We’re incredibly grateful for everything Duke and WFU have done for us. Zoe had what can only be considered a successful and relatively easy stay, considering her procedure, and I have to believe that Duke’s transplant expertise and care contributed heavily to that success.

From here on we’ll be outpatient, with clinic visits daily for awhile. We’ll be managing all of the things that the hospital managed while staying there, only now it’s split — med administration, blood draws and dressing changes happen at “home”, tests and checkups happen at the clinic.

I’ll go into more detail about everything once we understand it all, honestly it’s a little overwhelming.

For now, we’re going to get some sleep and enjoy being together again.


7 thoughts on “Day +43: Home Sweet Home (Away From Home)

  1. Michelle and Evan, Even though your smiles weren’t visible behind the masks, your eyes were clearly smiling! What a memorable day for your family. May you have peaceful and uneventful times in the next 60 days until you’re back at home #1. Love, Mara

  2. Dear Michelle,Evan,Maya,and Zoe,
    That is the terms on the back of of our PRAYER guide at Church were we list good news about our sick ones. I am saving our guides for you.
    We hope all goes well and you can renew your energy and look forward to the time when you will be going home.
    Love and Prayers.
    Nannie and John

  3. Michele, Evan, Zoe and Maya,

    What a day to celebrate!! So happy you are all together as a family even if you are not in your own home!! Take each minute and celebrate what an awesome God we have in healing us!!!

    We have so much to be thankful for and what a blessing each and every day is!!



  4. Maya, you are a beautiful princess and a wonderful big sister!!!
    I’m so glad that you are all together… might not be “home”…..but home is always where the heart is!!

  5. I am so happy for you, when Daniel gets home from camp we are going to have a confetti parade and a treat) in honor of Zoe.

    I can’t imagine how you feel and the emotions towards everyone you are leaving in the hospital, the gratitude is enormous,and overwhelming I am sure, they are the guardian angels of our children.

    Enjoy being together!!

  6. Evan and Michelle,
    For months you have walked through the fire, and at the end, where there could have been ashes, there were cheers, confetti and a chuckling baby. We are so happy for all of you!
    Eugenia P.

  7. I’m very happy to hear you all are out and Zoe is doing so wonderful! I’m very happy for you all. Zoe is such a trooper. It may not be home but you all will be together as a family again taking care of one another. May god bless you all always 🙂

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s