Still in the hospital, it’s looking more and more like we’ll be here ’til next week.
Zoe continues to have some discomfort, her cell growth has been through the roof on any days that we get growth factor. She went up to 23.8 WBC today, with lots of bands this time. She drifts down about 4 per day in her count it seems typically, 11 to 7 to 3 for example, then she gets growth factor and shoots back up. Those days are difficult, but getting better. 23 is our highest yet though, her ANC yesterday was 21,182.
We’ve been getting day passes, but she came back in with a sniffle yesterday and the doctors recommended we skip it today, so we are playing it safe. Her weight has also been up a little, but she’s also been nursing a little, so we’re not sure if that’s the reason for the gain.
Regardless, we’ll be keeping her in for a few more days until everyone feels like the risk of fluid retention is gone, and she no longer needs any pain medication beyond Tylenol.
Generally things are looking up. We’re roughly on schedule here, she’s engrafted, and with a good chimera result we’re just trying to work through the last remnants of mucositis and the pain of cell growth.
Michelle and I are truly exhausted, I think we’ve been running on adrenaline for quite some time now. With the most recent test results there is a bit of tension release going on, and with it fatigue as things catch up with us. Whenever we do get discharged, here’s hoping we can find a way to just sleep for a few days.
Still, the likelihood that we’ll all be back together is growing each day, so we’ll just keep focused on that sunny tomorrow until we’re out of here.
One thought on “Day +34”
So happy to hear that you have had the opportunity to have a day pass!! Hopefully next week you will be out and only going back as outpatient!
Zoe is so adorable!! Hope Maya is doing well!! We love you!!