We’re still here!
Zoe’s mucositis has improved somewhat, earlier than expected, but we’re not out of the woods yet. Days +5 to +10 are supposed to be the worst, the doctor on this week has said he expects it to peak on Thursday, but so far Days 3 and 4 have been the worst for us.
Since Zoe has stopped nursing more than sporadically, she’s had a little easier time of it. We’re trying to have the best of both worlds by nursing her a little for the benefits that offers, while not so much that she has increased mucus build up.
Very little else has changed. Zoe’s diaper rash is back with a vengeance, but we expected that. She has had tons of chemo but has no white cells to heal the breakdown, so it will linger for awhile. Her counts remain where they were, and they are unlikely to change significantly until after Day +10.
In the meantime, it’s a matter of keeping her in the best possible spirits and manage her pain and comfort, which we’re getting better at we feel.
Zoe’s WBC count has remained at “<0.1” for days now, which is somehow better than “0.0”. Now we wait for “0.2” or higher.
HLH Journal 
We all knew that there would be some rough times ahead but we hope that they are few and far between. We hope that Zoe’s discomfort is minor and manageable for her. We know how much you want the discomfort to be over for her for good. You all have been through a lot and have been amazingly strong through it all. Please know that you are all in our daily prayers and thoughts.
With love to all. Nannie and John
Hopefully Zoe’s discomfort will diminish daily. Continue to prayer for the pain to subside and her new cells begin to grow and grow and grow!!
Love you all,
Gail
Hang in there you guys. You are almost there, and shes a trooper. Sending thoughts and love.
Shantih and Maeio
It must be so hard to see her suffering but so important that you are stoking that hope and looking ahead to better days! I loved the story about Mikey (HIghway to Heaven always made me cry) and look forward to reading the poem if you can share it here.
Hang in there! It sounds like Zoe is doing as well as can be expected. I’m always heartened that the countdown days are now numbered in positive numbers instead of negative ones. Lots of love and prayers to the six of you. Mara
Go, Zoe!!! We’re so happy to hear that she’s recovering well, maybe even a little better than expected. What a fighter! We hope her pain subsides very soon. We love you guys and continue to pray for Zoe’s full recovery. Gina, Andrew, & Stella